Please do not close or refresh this window...
Saturday, Jun 1, 2019 at 9:30 AM to 5:30 PM GST
138, Digbeth, Birmingham, England, B5 6DR, United Kingdom
Access code applied successfully. Remove
Invalid access code. Try again
For 0 - 16 year olds
BVSC, The Centre for Voluntary Action, 138, Birmingham, England, B5 6DR, United Kingdom.
This is a day especially for people interested in and affected by aniridia.
Come to hear from experts in medicine, education and life with aniridia. Meet new people who are in the same situation as you or have been there previously.
Deadline to buy tickets is 11.45pm on Sunday 19 May
If you will need a carer to accompany you, contact us at conference@aniridia.org.uk.
Written and photographic instructions for how to walk from Birmingham New Street Station to the venue.
If you need a sighted guide from a transport hub, contact us to make arrangements.
We provide a creche for children under 12.
Join us for the conference after-party at a family-friendly nearby hotel bar. Make new friends, relax and buy your own drinks and food. We can later help you get back to the station whenever you are ready to leave
All attendees, speakers, sponsors and volunteers expected to adhere to our code of conduct to create a safe environment for everybody.
Information gathered as part of this event will be managed according to our privacy and data protection policy.
When discussing this event online, please mention Aniridia Network and use:
Aniridia Network is a support group and charity for people affected by aniridia: those who have it plus their family, carers, doctors, educators and other support givers.We want all these people to be hopeful, confident, supported and well informed regarding aniridia.
This event is currently unable to accept new registrations
Guide Dogs
Calibre Audio Library
Delegates register, get a name badge and information pack the can help themselves to tea or coffee.
Opening proceedings for Conference 2019, announcements and safety information.
Dr Ngozi Oluonye aims to give an overview of the management of the child with visual impairment, what to expect in the early days, the knowledge gained over the past decade about the impact of visual impairment on the overall development of the child, information about support available within the early years and finally an update on current and proposed research into Aniridia
Consultant Paediatrician Great, Ormond Street Hospital
A chance for delegates to talk to parents and patients about their experiences of dealing with aniridia and or WAGR syndrome
The AGM is a formal meeting of the Aniridia Network members. It is the official part of our Conference. The trustees will present a report on the work that has been carried out over the previous year. This includes the financial records of ANUK, fundraising and other activities. The trustees are volunteers responsible for controlling the management and administration of the charity. They are appointed by members in an election at the AGM. We need more help so find out about joining the trustee team. As well as the formal business of the AGM, there is also the opportunity to ask the trustees questions and put forward suggestions for future activities and fundraising.
Aniridia Network Trustees
Miriam shares her personal achievements whilst living with Anirida and other health conditions.
Member Aniridia Network
Insights in to working and living with aniridia - life experiences
Communications Officer Aniridia Network
A chance for members to share with each other their experiences of living with aniridia and or WAGR Syndrome.
An opportunity for for patients of aniridia to discuss topics of their choice.
Advocating for the needs to children with sight loss in education
Special Educational Needs advisor
An opportunity for people with aniridia to talk as a group about topics of their choice, led by an Aniridia Network official.
Dr Simon Hayhoe will share is experience of helping build a more inclusive society by looking at case studies for education and work place. the empowerment of disabled people to make there own inclusion possible and looking at skills and accessible technologies.
PHD FBCS FHEA (Reader) Bath University
Eleanor share her life of living with aniridia her achievements including experience at school, moving to London, access to work and a career in physiotherapy.
Trustee Aniridia Network
Conclusion of event, Thanks etc..
Join us for the conference after-party in the bar of the nearby family-friendly Radisson Blu hotel bar. Make new friends, relax and buy your own drinks and food. We can later help you get back to the station whenever you are ready to leave. https://www.radissonblu.com/en/hotel-birmingham
Please enter below, the secure invite code provided to you by the event organizer in order to proceed...
(Please use a genuine email address. It will be used to validate your request)
Saturday, Jun 1, 2019 at 9:30 AM to 5:30 PM GST
138,
Digbeth,
Birmingham,
England,
B5 6DR,
United Kingdom
